我记得我站在和银河游戏app的小绿松石胶木餐桌齐眼的位置,看着父亲用注射器练习给橘子注射. Although she was in her early 20s, 我的母亲刚刚被诊断出患有当时被称为“青少年糖尿病”的疾病.“在用橘子练习了几轮注射后,爸爸给妈妈注射了胰岛素. And thus, at three years of age, I was introduced to living in a family with a chronically ill parent. 银河游戏app进行例行的“妈妈训练”——如果妈妈开始做傻事或者, even worse, was unconscious due to low blood sugar.

Cindy Fair, Professor of Public Health Studies and Human Service Studies, 瓦茨/汤普森教授,公共健康研究系主任站在那张绿松石桌子前看着我父亲先注射橙子, and then my mother, 让我意识到没有一种疾病只会影响一个人. My mother was ill. My father, siblings, 在她治疗糖尿病和相关并发症时,我和邻居们都在支持她. 在考虑到整个人和她所处的环境的情况下检查疾病是必要的. 我的童年经历塑造了我在疾病和家庭方面的临床和研究兴趣. 家庭成员的疾病如何影响他人的经历? What are ways to support families affected by illness? How do roles shift and change over time?

我的整个职业生涯都专注于一种特殊的疾病:HIV(人类免疫缺陷病毒). Originally, HIV was solely considered a “gay disease.“然而,尽管有先入为主的观念,其他群体也受到了影响. 主要城市的儿科医生开始注意到,生病的母亲生下了生病的婴儿——这些婴儿的症状与死于艾滋病的男同性恋者相同. Perinatal HIV infection (PHIV) was publicly acknowledged in 1983. Researchers learned that HIV could be transmitted during pregnancy, delivery and later through breastmilk.

20世纪90年代初,我在美国国立卫生研究院(NIH)做过社会工作者. For the first time, 临床试验检查了治疗艾滋病毒感染的药物(抗逆转录病毒治疗)的安全性和有效性, or ART) for children with HIV. 全国各地的儿童都飞往国立卫生研究院接受评估并登记接受实验治疗. I conducted psychosocial assessments, 在家属决定披露信息和治疗方案时给予支持, and identified resources in their home communities. I observed firsthand the physical devastation caused by HIV, as well as the emotional consequences due to stigma.

Since then, 医学进步和治疗途径的改善已将艾滋病毒感染从死刑转变为慢性疾病. 银河游戏app了解到,在怀孕和分娩期间对艾滋病毒阳性孕妇进行抗逆转录病毒治疗可以将母婴传播风险从30%降低到不到2%. 出生时携带艾滋病毒的儿童数量急剧下降,以前受感染的儿童开始活得更长.

我的奖学金跟踪了儿科艾滋病领域的发展,并从创新的干预措施开始, such as telephone support groups and art therapy. 随着儿童寿命的延长,我研究了他们进入青春期和青年期的过渡. 医学界和他们的监护人似乎很惊讶,围产期感染艾滋病毒(PHIV)的年轻人的行为与未感染的同龄人非常相似, exploring sexuality and taking risks. However, 携带PHIV病毒的儿童无法生存,大多数人在生活中经历了重大损失. How would they navigate young adulthood under such conditions?

我的奖学金跟踪了儿科艾滋病领域的发展,并从创新的干预措施开始, such as telephone support groups and art therapy. 随着儿童寿命的延长,我研究了他们进入青春期和青年期的过渡. 医学界和他们的监护人似乎对感染了PHIV的年轻人的行为与未感染的同龄人非常相似感到惊讶, exploring sexuality and taking risks. However, 携带PHIV病毒的儿童无法生存,大多数人在生活中经历了重大损失. How would they navigate young adulthood under such conditions?

我最感兴趣的是青少年和年轻人的生活经历, rather than a singular focus on one outcome. For example, 当一个人一生都感染了艾滋病病毒时,她该如何建立一段浪漫的关系? 他想成为一名父亲吗?他了解艾滋病毒传播的风险吗? 有PHIV的青少年如何从儿科护理过渡到成人护理,在成人护理中,他们需要独立管理医疗决策? How do parents with PHIV deal with disclosure to their children?

My latest research focuses on an emerging population in the U.S.: internationally adopted children with HIV. 人们对养父母和孩子的需求和经验知之甚少. 回答这些问题有助于围绕儿童和青少年艾滋病毒进行更广泛的学术和临床对话,并放大了艾滋病毒携带者的声音.

Throughout my career at Elon, 我一直将我的临床工作和研究融入课堂. 也许最令人满意的方面是帮助年轻学者精心设计有意义和可行的研究问题,推动社会工作和公共卫生领域向前发展. 我指导的学生研究已经在国际上发表并发表在顶级期刊上. 能和学生们一起站在他们的绿松石桌旁,帮助引导他们走向自己的探索和自我发现之路,我感到非常荣幸.